update

     I know it has been a billion years since I've posted, but things have been really crazy lately. Last Tuesday I was rushed back to Barnes in horrible pain in my abdomen. It took them less than an hour to admit me and decide I had an infection in my intestinal tract. I was lucky to have josh with me, holding my hand while I cried and talking to the docs when they had me basically sedated. Once I got up to my room they made sure I was started on Vanc and Zosyn and my pain meds were scheduled the best possible way to keep me comfortable. 
     To those of you who have the annoyance of knowing me personally you know that I am not the best patient. I'm great to the nurses and even respectful to the docs provided I get it back, but I am quick to bolt...extremely quick to bolt. A string of bad roommates and not seeing my baby I was hysterical by Thursday when they finally agreed to send me home on my IV meds. Did Thursday strike anyone else as not good since we had a friggin snow/ice storm? I ended up staying with my grandma until my uncle brought me to my baby Friday afternoon. 
     Josh thought it would be great to have a nice night together and rent movies, which was a great night since I felt like such crap anything else seemed like too much. Spent most of the night laying next to Josh sick as all get out. Woke up at four to run meds and take more pain meds well, they wouldn't go down my tube like they are suppose to. With the past permission of my surgeon I pulled the tube and tried to clear the blockage and then put it back in and it still didn't flush. I eventually got too tired and went to sleep set to deal with it in the morning.
     Morning came to me hearing my beautiful little miracle calling for me from his room with a huge poopy diaper (welcome home momma). I made him breakfast and played with him for a little while. As time came closer for home health to come and do labs and change my needle I went up and woke Josh up who took over being the daddy monster while I tried to flush my tube again. This time the ten ml of water pushed and then came streaming out of my stoma as bloody bile. It became apparent that we couldn't infuse meds or anything into it, which  isn't' much of a difference than usual. The nurse came and drew labs, took two needle sticks to get my port accessed and actually didn't have it in the right place. As soon as she left I went to run my antibiotics and the saline flush burned and began swelling,which to those of us in central line land know that means to leave it alone.
     Spent most of the day laying in bed crying like a two year old because I didn't feel well. I even resorted to cuddling with Damien in his elmo bed for a little while because he always makes me feel better no matter how bad it all hurts. I ended up getting a phone call late afternoon telling me my vanc troph was really high and they needed to call the doc. The doctor who was on call got the fun job of calling me, the truly compliant patient and telling me that my kidneys had stopped filtering the way they were suppose to which is why the antibiotics couldn't clear my system the way they were suppose to. Guess who had to go back to Barnes and wait in the ER for a very long time by themselves to be told they were in acute renal failure and would have to stay. 
     So, here I sit getting slowly better and facing another consequence after another. I guess during the tube ordeal it ended up in the wrong place and today when IR tried they couldn't get the tube back in, so I'm tubeless. That is a bit problematic since the docs are anti-TPN and my meds haven't all been switched to sublingual and patches. The choices available are start IV nutrition or another surgery to place a new J tube...blah! Just trying to stay positive and to those of you who read this and wonder if I'm on drugs...I am...2 of Diluadid every two hrs explains for the typos and spasticness of my usually better writing. Love all of you and hope to be free from here soon!